Went to Woking for a couple of days this Weekend. Well left after Friday plasma and returned for dialysis on Sunday. Had my birthday at my brothers and saw my 2 month old niece who is great. It was a nice couple of days.
Plasma and dialysis have been ok - my hb has continued to drop 6.5 today. I would have had a blood transfusion by now if they were not worried about the antibodies etc. Every time I think the hb has got better the lower it goes!
Waiting for this weeks cross match results - it is now my 8 week. I have had a total of about 60 litres of plasma removed over this time and replaced and have been on machines for about 140 hours over the last 7/8 weeks. It is like having a full time job with one day a week off when you feel to tired to do too much anyway. Hopefully it will be all worth it in the end.
I was told that I was in the evening post last Saturday - hope to get a copy off that soon
Showing posts with label hb. Show all posts
Showing posts with label hb. Show all posts
Monday, 22 October 2007
Monday, 15 October 2007
1 more week
Not to much to say. Had bloods done today on plasma. hb is 7.1 this is another drop of about .3 but that is less than normal weekly drops of 1. So thats ok - if I was a normal person and not having this treatment they would have probably have given me a blood transfusion.
I had my picture taken by the evening post who are doing some sort of article on transplantation.
Felt weird after plasma - had to go to bed for about 3 hours and sleep, but felt better after that. Can't really explain the feeling except that it was weird.
Still waiting for more of an idea of what th antibodies in my blood are and how they are going to move forward.
Will try and write more tomorrow.
I had my picture taken by the evening post who are doing some sort of article on transplantation.
Felt weird after plasma - had to go to bed for about 3 hours and sleep, but felt better after that. Can't really explain the feeling except that it was weird.
Still waiting for more of an idea of what th antibodies in my blood are and how they are going to move forward.
Will try and write more tomorrow.
Wednesday, 10 October 2007
Cross matching, plasma and press
Quite a bit to update. Firstly I am feeling tired - due to low hb and am finding if I walk quickly I get out of breath. This is not due to some sudden loss of fitness, it is due to low hb. I basically can't get enough oxygen to my body and thus it gets tired and breathless.
The cross match results showed little change - the original antibody seems to be controlled now. But we have these wierd antibodies that are giving positive cross match results. Hopefully roche will come back with some good news.
Press. On plasma this morning I was phoned by one of the transplant coordinators to ask if I would go on the radio. An hour later I was live on BBC Bristol Radio taking part in a discussion about transplants and there effects. I now have the evening post wanting to do an article on me and transplant - appearing next week- I guess. I am always a bit reserved about the press but think that this is a good cause and that there heart is in the right place. We will see.
The cross match results showed little change - the original antibody seems to be controlled now. But we have these wierd antibodies that are giving positive cross match results. Hopefully roche will come back with some good news.
Press. On plasma this morning I was phoned by one of the transplant coordinators to ask if I would go on the radio. An hour later I was live on BBC Bristol Radio taking part in a discussion about transplants and there effects. I now have the evening post wanting to do an article on me and transplant - appearing next week- I guess. I am always a bit reserved about the press but think that this is a good cause and that there heart is in the right place. We will see.
Monday, 8 October 2007
weekend
Had a good weekend. Plasma was fine on Friday morning. Drove down to my parents after and had sleep in the afternoon. My brother and sister in law drove down from Woking with my 2 month old niece.
On Saturday we had a good day going to Lyme Regis and playing mini golf (outdoors so did not come to close to other people and when we had a ice cream I did not eat the cone because my hands had been touching the ball, club and mini golf course and I had not washed my hands.) we followed this with England and France winning the Rugby. On Sunday drove back to Bristol for dialysis. My niece is lovely - growing fast and is lucky to have such good parents.
Dialysis was fine although I had a badheadache afterwards - thought this was from being dry but not so sure now. Have increased target weight by 1kg but this did not seem to help?
Plasma this morning was fine. Although my hb has dropped to 7.3 - I thought it has stabalised. This is now getting low. The doctor has upped my eypo but this takes at least a month to start working. They took cross matching bloods, the doctor did not arrive to collect them so I took them directly to the consultant. I think the blood unit were amazed that I was phoning my consultant on his mobile. But that seems to work best all round. As things are quite complicated with all the procedures at the mo.
The next potential date for transplant seems to be the 2nd Nov but this is not set in stone. If the treatment works before then I would guess that they will do the transplant sooner than later - helping to reduce the time I am being immunosuppressed.
On Saturday we had a good day going to Lyme Regis and playing mini golf (outdoors so did not come to close to other people and when we had a ice cream I did not eat the cone because my hands had been touching the ball, club and mini golf course and I had not washed my hands.) we followed this with England and France winning the Rugby. On Sunday drove back to Bristol for dialysis. My niece is lovely - growing fast and is lucky to have such good parents.
Dialysis was fine although I had a badheadache afterwards - thought this was from being dry but not so sure now. Have increased target weight by 1kg but this did not seem to help?
Plasma this morning was fine. Although my hb has dropped to 7.3 - I thought it has stabalised. This is now getting low. The doctor has upped my eypo but this takes at least a month to start working. They took cross matching bloods, the doctor did not arrive to collect them so I took them directly to the consultant. I think the blood unit were amazed that I was phoning my consultant on his mobile. But that seems to work best all round. As things are quite complicated with all the procedures at the mo.
The next potential date for transplant seems to be the 2nd Nov but this is not set in stone. If the treatment works before then I would guess that they will do the transplant sooner than later - helping to reduce the time I am being immunosuppressed.
Wednesday, 3 October 2007
Plasma and Iron
Back from Plasma - feel ok today imagine that I will feel tired later and need a sleep. I actually enjoyed plasma today - it is quite boring sitting at home alone and not being able to go out because of quarantine. The staff at the blood service are happy people who can take a joke and joke back. They are also very caring. It is slightly different to dialysis in the fact that plasma is one on one nursing whilst dialysis is not. This means that you talk and get to know the plasma nurses better and they have a better idea of how you are feeling.
I had iron for the first time in a month last night- there had been some confusion and it had been missed for a while. My iron had dropped to a low level. Iron is important as it helps hb carry oxygen around the body. I actually feel a lot better today with a bit more energy and think this may be down to iron. It could also be all in the mind.
I have not heard anything about the cross match tests from monday- so I presume treatment carries on as is.
I am feeling ok both physically and mentally which is good, the donations are brilliant and it gives me something to do.
I had iron for the first time in a month last night- there had been some confusion and it had been missed for a while. My iron had dropped to a low level. Iron is important as it helps hb carry oxygen around the body. I actually feel a lot better today with a bit more energy and think this may be down to iron. It could also be all in the mind.
I have not heard anything about the cross match tests from monday- so I presume treatment carries on as is.
I am feeling ok both physically and mentally which is good, the donations are brilliant and it gives me something to do.
Monday, 1 October 2007
Monday
I was up early today - had to be at plasma for 8.30 so that they could fit another patient in after me. Had a bad headache after dialysis last night - not sure if I am to dry or perhaps linked to hb. Woke up and it had gone.
Had about 9 tubes of blood done for the cross matching (it's that time of week.) Apart from that Plasma went fine - at the end during rinse back I tasted the citrate and also felt flushed interestingly my temp want from 36.5 to 37.1 over half an hour. I am sure I had a minor reaction.
Had an email from the Doc explaining his latest thinking and how they are trying to prove things. It will be interesting what the results show today.
The fundraising is going well. We have reached over a £1000 that is brilliant- a massive thank you to everyone who has donated, told people about the idea or both. The idea also seems to be working in which friends of friends are spreading the word. This is so good - it makes me excited.
If you are reading this blog for the first time. Visit www.justgiving.com/amillionthanks to find out about our fundraising effort.
The popularity of this blog has grown rapidly over the past week which makes it feel more worthwhile recording my thoughts and experiences.
Will post more later. If you any questions or comments please leave them below.
Had about 9 tubes of blood done for the cross matching (it's that time of week.) Apart from that Plasma went fine - at the end during rinse back I tasted the citrate and also felt flushed interestingly my temp want from 36.5 to 37.1 over half an hour. I am sure I had a minor reaction.
Had an email from the Doc explaining his latest thinking and how they are trying to prove things. It will be interesting what the results show today.
The fundraising is going well. We have reached over a £1000 that is brilliant- a massive thank you to everyone who has donated, told people about the idea or both. The idea also seems to be working in which friends of friends are spreading the word. This is so good - it makes me excited.
If you are reading this blog for the first time. Visit www.justgiving.com/amillionthanks to find out about our fundraising effort.
The popularity of this blog has grown rapidly over the past week which makes it feel more worthwhile recording my thoughts and experiences.
Will post more later. If you any questions or comments please leave them below.
Wednesday, 26 September 2007
A bit more balanced
My body is feeling a bit more balanced than last week. Although I am tired from low hb 8.8 today. We have decided to only take bloods weekly to try and reduce the amount of blood I am losing, that makes sense. I am hoping that the higher eypo will kick in some time next week and the hb levels will begin to rise?
Slept for a few hours this afternoon and feel good after that. No other news just waiting for the results of further cross match tests and other tests to try and work out what is causing the odd results.
Slept for a few hours this afternoon and feel good after that. No other news just waiting for the results of further cross match tests and other tests to try and work out what is causing the odd results.
Tuesday, 25 September 2007
Weekend update
This weekend was good - I felt a lot better and managed to eat more and relax a bit. I am still pretty tired.
Went to dialysis on Sunday morning and managed 2 out of the 4 hours. When all the alarms went off in the unit on the machines. Someone had been doing maintenance on the water supply and the water went off. Basically when this happens the machines don't like it. After 20 mins you have to come off as the blood starts to get to cold.
I was taken off and asked if I wanted to stay until it was fixed. We had no idea how long that would take. I decided to come off - within 5 minutes it had been fixed. This basically meant I was 2 hours short of dialysis. At this stage I did not know if the transplant was going to happen on Friday or not so I said I would do 2 hours on Monday followed by 4 on Tuesday.
Plasma went fine on Monday and all the cross match bloods were done, at this point the indications of a transplant on Friday were good. I felt not so confident over this.
Dialysis was fine - 2 hours. My fistula is looking well used now. Got the nurse (who is great at needling my fistula to use a couple of new sites. That was fine. My hb was 9.6 - this is getting low. Speaking to the doctor we are hoping that is has now stabilized.
Went to dialysis on Sunday morning and managed 2 out of the 4 hours. When all the alarms went off in the unit on the machines. Someone had been doing maintenance on the water supply and the water went off. Basically when this happens the machines don't like it. After 20 mins you have to come off as the blood starts to get to cold.
I was taken off and asked if I wanted to stay until it was fixed. We had no idea how long that would take. I decided to come off - within 5 minutes it had been fixed. This basically meant I was 2 hours short of dialysis. At this stage I did not know if the transplant was going to happen on Friday or not so I said I would do 2 hours on Monday followed by 4 on Tuesday.
Plasma went fine on Monday and all the cross match bloods were done, at this point the indications of a transplant on Friday were good. I felt not so confident over this.
Dialysis was fine - 2 hours. My fistula is looking well used now. Got the nurse (who is great at needling my fistula to use a couple of new sites. That was fine. My hb was 9.6 - this is getting low. Speaking to the doctor we are hoping that is has now stabilized.
Friday, 21 September 2007
Next week
I am still pretty tired - plasma day is always knackering. Was told today that I don't need my bladder inflated before the transplant.
They do the next cross match on Monday and decide on Tuesday if my antibodies have been removed yet. I don't think they had been removed last Monday. I am thinking that they probably will be around this Monday. My body is normally quite a fighter, it often takes more time and drugs to do stuff to my body than is the norm. Their is a chance that they will not be able to remove the antibodies and hence not be able to do the transplant.
My hb was similar to Wednesday result so it seems that it has stabilised. Hopefully it should start lifting soon.
It also appears that my blood vessels are not as good as I was led to believe. I have narrowing of a vein near my current transplant (rejected) which means they are probably going to leave that one in place and use the right side of my stomach.
Transplanted kidneys normally get put in the front of your body just above your pelvis. As I have had two before their is a chance they will have to put this one higher up near the stomach.
They do the next cross match on Monday and decide on Tuesday if my antibodies have been removed yet. I don't think they had been removed last Monday. I am thinking that they probably will be around this Monday. My body is normally quite a fighter, it often takes more time and drugs to do stuff to my body than is the norm. Their is a chance that they will not be able to remove the antibodies and hence not be able to do the transplant.
My hb was similar to Wednesday result so it seems that it has stabilised. Hopefully it should start lifting soon.
It also appears that my blood vessels are not as good as I was led to believe. I have narrowing of a vein near my current transplant (rejected) which means they are probably going to leave that one in place and use the right side of my stomach.
Transplanted kidneys normally get put in the front of your body just above your pelvis. As I have had two before their is a chance they will have to put this one higher up near the stomach.
Wednesday, 19 September 2007
Tired
I am feeling tired at the moment. I put it down to a number of things. First the treatment is increasingly severe on the body. It seems to take longer each time to feel normal after plasma. Secondly my hb has dropped significantly over the past 17 days from 14.5 to 9.9 although it was slightly up today at 10.5. This basically means that I have about 2/3rds of the oxygen carrying cells in my body - this basically makes it harder to do things and recover from procedures. The level I am at the moment is not that low but I think the rapid decrease has made it feel worse.
I hope that the hb downward trend has stopped.
I am also feeling less hungry by the day, no idea the exact reason for this. Probably due to a combination of things. It is a sort of chemical sickness feeling that takes away the feeling of hunger.
I also often feel slightly fluie in the evenings.
Apart from all the above,which I think are all expected side effects I am fine.
I note that my potassium was 6.1 the other day. This is the most it has been since being on dialysis. No idea why it was at that level - perhaps lab error or perhaps plasma puts it up? A high potassium level is not good - it can cause a heartattack.
I hope that the hb downward trend has stopped.
I am also feeling less hungry by the day, no idea the exact reason for this. Probably due to a combination of things. It is a sort of chemical sickness feeling that takes away the feeling of hunger.
I also often feel slightly fluie in the evenings.
Apart from all the above,which I think are all expected side effects I am fine.
I note that my potassium was 6.1 the other day. This is the most it has been since being on dialysis. No idea why it was at that level - perhaps lab error or perhaps plasma puts it up? A high potassium level is not good - it can cause a heartattack.
Monday, 17 September 2007
Long day - lots happening
Today has been hectic and I am pretty tired.
First update as I have not done a proper update since last wednesday. Things are mostly fine with plasma and dialysis. In Friday one of the nurses accidentally managed to prick herself when taking one of the needles out, this caused a bit of confusion as what the protocol is. It turns out that we both have to have our bloods checked for viruses. I am pretty confident that I am fine as I am screened regularly, they did a viral screen on Saturday and again today. These things happen...
Friday eve and Sat morning was suffering from a bad stomach. This is not like the normal stomach pains - it is hugely chemical drugs based and unpleasant. It seems to go as quick as it comes though
My dialysis session on Sunday was changed to Saturday twighlight as the sunday staff wanted to go to a leaving party. This was fine although it did mean we had to run plasm a little slower today as I have more creatinine in mm blood.
Otherwise the end of week and weekend has been fine. I went orienteering on Saturday - basically 1 hour of running around trying to find hidden points using a map and compass. I could not manage to run the whole thing - but had fine and got some fresh air.
Today
Plasma was fine - ran slower due to dialysis on sat and not sunday. HB dropped again to 10.3. Spoke to doctor later in the day and he agreed to increase eypo to 60 from 20. This will take a while to work.
Met with the surgical team as well. They impressed me, one of the top uk surgeon is doing my transplant which is great. Due to the treatment the date of the transplant could be 28th of this month but it could also be after that. The surgeon said they may even have to come in on a saturday. I responded that means I have also put off what I am doing and come in on a saturday "that caused much laughter"
He asked me questions and considered my past history. He shook his head a bit and decided that I needed a full scan of my arteries and veins around my stomach and legs to decided which is the best place for the kidney. He thinks he will take out the current kidney that failed and replace with the new one.
He also said as I have basically not passed urine for 18 months my bladder would have shrunk. I have to go and my bladder stretched before the operation. This makes my eyes water thinking about it, basically a tube up the private part into the bladder. Water then pushed in and drained out. This will cause it to stretch and hopefully be better for the surgery and the kidney afterwards. Will reduce the build up of pressure.
I then had to go to see a ethics person with my family to prove we were related etc. All pretty simple stuff. A bit more paperwork...
They managed to fast track the renal scan, so had this done in the afternoon. Took about 30 mins, the guy was very informative. I hate echos and that whooshing sound. Anyway from what he said it seems that I have very good arteries and veins. Like a normal person. That is good. Did you know the more movement you do the better it is for you veins and arteries.
They review todays cross matching on Wednesday. This will probably give us a good idea about the potential of the transplant happening next Friday.
First update as I have not done a proper update since last wednesday. Things are mostly fine with plasma and dialysis. In Friday one of the nurses accidentally managed to prick herself when taking one of the needles out, this caused a bit of confusion as what the protocol is. It turns out that we both have to have our bloods checked for viruses. I am pretty confident that I am fine as I am screened regularly, they did a viral screen on Saturday and again today. These things happen...
Friday eve and Sat morning was suffering from a bad stomach. This is not like the normal stomach pains - it is hugely chemical drugs based and unpleasant. It seems to go as quick as it comes though
My dialysis session on Sunday was changed to Saturday twighlight as the sunday staff wanted to go to a leaving party. This was fine although it did mean we had to run plasm a little slower today as I have more creatinine in mm blood.
Otherwise the end of week and weekend has been fine. I went orienteering on Saturday - basically 1 hour of running around trying to find hidden points using a map and compass. I could not manage to run the whole thing - but had fine and got some fresh air.
Today
Plasma was fine - ran slower due to dialysis on sat and not sunday. HB dropped again to 10.3. Spoke to doctor later in the day and he agreed to increase eypo to 60 from 20. This will take a while to work.
Met with the surgical team as well. They impressed me, one of the top uk surgeon is doing my transplant which is great. Due to the treatment the date of the transplant could be 28th of this month but it could also be after that. The surgeon said they may even have to come in on a saturday. I responded that means I have also put off what I am doing and come in on a saturday "that caused much laughter"
He asked me questions and considered my past history. He shook his head a bit and decided that I needed a full scan of my arteries and veins around my stomach and legs to decided which is the best place for the kidney. He thinks he will take out the current kidney that failed and replace with the new one.
He also said as I have basically not passed urine for 18 months my bladder would have shrunk. I have to go and my bladder stretched before the operation. This makes my eyes water thinking about it, basically a tube up the private part into the bladder. Water then pushed in and drained out. This will cause it to stretch and hopefully be better for the surgery and the kidney afterwards. Will reduce the build up of pressure.
I then had to go to see a ethics person with my family to prove we were related etc. All pretty simple stuff. A bit more paperwork...
They managed to fast track the renal scan, so had this done in the afternoon. Took about 30 mins, the guy was very informative. I hate echos and that whooshing sound. Anyway from what he said it seems that I have very good arteries and veins. Like a normal person. That is good. Did you know the more movement you do the better it is for you veins and arteries.
They review todays cross matching on Wednesday. This will probably give us a good idea about the potential of the transplant happening next Friday.
Labels:
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hb,
needlestick injury,
plasmaphersis,
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Tuesday, 11 September 2007
Catch up
Went to find my doctor today to catch up and also to mention about hb levels dropping. I was thinking that this procedure would not be great if you did not have a good relationship with your doctor. It is great that he makes the time to explain stuff and listen to my questions and concerns.
My mmf has been reduced to try and allow my hb to stop falling. Apparently I the rituximab did it job and I have been blasted removing some type of specific cell... forgot which one.
A thought about dialysis. Tonights dialysis was fine - my named nurse is great - she has been keeping a close eye on me. I waited for her to come to work today so that she could put me on. Most of the staff at the dialysis unit are both very professional and good people (I want say all because I would be lying - but the majority are.)
I strongly believe that the dialysis centres should have a physio see that patients from time to time. Sitting on a machine for 4 hours is not good for the shoulders and neck. We should be taught exercises etc to help prevent damage and pain. I will suggest this at the next patient forum meeting.
They are reviewing my cross match tomorrow - this basically shows if the treatment is working. They are expecting more immunity this week because my white cells should be going into turbo drive as they will have discovered that their allies in the blood have all been killed. Apparently it is a feedback mechanism.
My mmf has been reduced to try and allow my hb to stop falling. Apparently I the rituximab did it job and I have been blasted removing some type of specific cell... forgot which one.
A thought about dialysis. Tonights dialysis was fine - my named nurse is great - she has been keeping a close eye on me. I waited for her to come to work today so that she could put me on. Most of the staff at the dialysis unit are both very professional and good people (I want say all because I would be lying - but the majority are.)
I strongly believe that the dialysis centres should have a physio see that patients from time to time. Sitting on a machine for 4 hours is not good for the shoulders and neck. We should be taught exercises etc to help prevent damage and pain. I will suggest this at the next patient forum meeting.
They are reviewing my cross match tomorrow - this basically shows if the treatment is working. They are expecting more immunity this week because my white cells should be going into turbo drive as they will have discovered that their allies in the blood have all been killed. Apparently it is a feedback mechanism.
Monday, 10 September 2007
Running
Just went for a short run ending with a walk. Beautiful evening - ran for about 20 mins and then walked for about a further 15 mins. Interestingly my pulse is running higher when running than it has been - I put this down to lower hb levels and my heart having to pump faster to get o2 to my muscles?
Feel better anyway from the running
Feel better anyway from the running
Skin
I have noticed that my skin is dry especially around my eyes and face. I am guessing this is due to drugs, plasma and dialysis having an effect on my body. I am also suffering a bit more from stomach aches - this I am sure is from mmf. Last time I was on mmf I had it much worse.
My hb has dropped again - 12.1. I am now positive that the mmf is having an effect and bringing my hb down by suppresing my bone marrow effectivness. I have raised it with the doctor and will see what they are going to do. I know that this type of thing if not caught early tends to cause problems latter on - with hb you need to react early as it takes a while to make it increase again.
Monday is cross match day - they took loads of blood today from both me and dad. A little bit of confusion over which bloods were needed but I think it was all resolved.
Blood pressure was a bit higher today 143/88 going on plasma and 137/72 coming off.
Not much else to report.
My hb has dropped again - 12.1. I am now positive that the mmf is having an effect and bringing my hb down by suppresing my bone marrow effectivness. I have raised it with the doctor and will see what they are going to do. I know that this type of thing if not caught early tends to cause problems latter on - with hb you need to react early as it takes a while to make it increase again.
Monday is cross match day - they took loads of blood today from both me and dad. A little bit of confusion over which bloods were needed but I think it was all resolved.
Blood pressure was a bit higher today 143/88 going on plasma and 137/72 coming off.
Not much else to report.
Friday, 7 September 2007
Sunshine and the weekend
I have finished my plasma session. They managed to run it even faster today thus took less than 2 hours. I have had no reactions so far to the treatment and the citrate. I think my body is pretty accepting and strong.
The doctor in charged said she had not met anyone who was so laid back during treatment, I took that as a compliment. The thing is I actually feel very laid back and not that worried about it. I suppose I have accepted what will be will be and that the more relaxed I can be the better for my body, my brain and the people around me.
I think often when you are ill, a lot of the stress you build up is related around worrying about the effect you are having your loved ones. You don't want them to worry but it is difficult as this is a natural reaction. It can be a difficult situation.
I now have a break and don't need to go back for anything until Sunday afternoon. That means I have got a complete day off tomorrow which I am looking forward to as is my arm. And it is sunny I think I might go for a run/walk later to get some sun and fresh air.
My lymphocytes are now 1.2 from 1.6 which I think is good.
hb 13 (this week it has ranged from (13 - 14.7) that is a big range.
I am trying to chase one of the doctors to organise blood taking for monday - to all be done at the blood unit. This would simplfy things but I need to get hold of him to tell him that the plasma unit have agreed. I have left a message.
This week I have been on machines for about 30 hours. That is 30 hours of my blood being pumped around and around. I still find this weird - it is just amazing that the body can deal with it.
What post the pictures soon..
The doctor in charged said she had not met anyone who was so laid back during treatment, I took that as a compliment. The thing is I actually feel very laid back and not that worried about it. I suppose I have accepted what will be will be and that the more relaxed I can be the better for my body, my brain and the people around me.
I think often when you are ill, a lot of the stress you build up is related around worrying about the effect you are having your loved ones. You don't want them to worry but it is difficult as this is a natural reaction. It can be a difficult situation.
I now have a break and don't need to go back for anything until Sunday afternoon. That means I have got a complete day off tomorrow which I am looking forward to as is my arm. And it is sunny I think I might go for a run/walk later to get some sun and fresh air.
My lymphocytes are now 1.2 from 1.6 which I think is good.
hb 13 (this week it has ranged from (13 - 14.7) that is a big range.
I am trying to chase one of the doctors to organise blood taking for monday - to all be done at the blood unit. This would simplfy things but I need to get hold of him to tell him that the plasma unit have agreed. I have left a message.
This week I have been on machines for about 30 hours. That is 30 hours of my blood being pumped around and around. I still find this weird - it is just amazing that the body can deal with it.
What post the pictures soon..
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