Day 17

So it is 17 days since the transplant. Things are looking positive at the moment. The doctors are keen to get past the 3 week stage as this is when they have seen the most rejection in the type of treatment I have had.

I am feeling good - my body is adjusting to having been sliced open again and I am gaining strength and energy. I am still taking it pretty easy and trying not to do to much. I think that by a month I will start to do some longer walks etc. I could do it now but think it is wise to let the body build up slowly.

I ahve just finished writing a document for the doctors at Southmead about a patients perspective on desensitization protocol. I felt this was important as it illustrated how good the team was and suggested some things that would make the process easier.

I still aim to do a full update on the last 2 weeks and a bit as I feel that anyone going through this treatment may find it interesting and informative.

General Update

For those that have been keeping track of my blog, sorry for not posting for the last couple of weeks. As most of you aware the transplant happened on the 2nd and I was released from hospital on Monday. I am still being closely monitored and as the doctor said am still in the amber alert zone...

Firstly I would like to thank everyone who has asked how things are going etc- it has been nice to hear that people are and were thinking of me. Thanks again.

One of the main aims of this blog is to try and record my thoughts and experiences for people who will go through the same treatment as myself. I think it is important that I take the time to document what happened to me when I was in hospital - I will try and do this is some detail. I warn you that some of it will be unpleasant reading but I think it is worth documenting.

It is still very early days for this transplant and rejection could take place at anytime - this of course keeps the stress levels pretty high.